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Care or Personal Assistance around the World

Articles, interviews and reports about the situation of people who need practical daily help for their survival. For our purposes, “care” and “personal assistance” denote the two extremes of one conceptual continuum.

  •   “Care” means here getting fed, toileted, washed and dressed - the bare minimum needed for physical survival. With “personal assistance” the individual with a disability is in control and decides what is to be done, who is to work, and how, where and when the work is to be carried out.
  •  “Care” allows us to survive, “personal assistance” enables us to live.
  •  In “care” we are seen and made to feel as passive objects. With “personal assistance” we are subjects who can take our rightful place in family, community and society as full citizens, with the duties and rights that citizenship entails.
  • With “care” we are not allowed to contribute much. With “personal assistance” interests, work, relationships and parenthood are possible for us depending on our potential and preferences.
  • In “care” others decide for us. With “personal assistance” we decide.

Where along this continuum between “care” and “personal assistance” do we live?  What are the consequences of a particular country’s policies in terms of our possibilities for inclusion, participation and self-determination? We want to highlight good solutions but we also need to document the injustice, negligence and sometimes outright oppression that our group is still exposed to.

Our ambition is to have updated descriptions of the situation in many countries. Most of the texts are in English, some in a few other European languages (for Swedish texts see assistanskoll.se). 

We invite you to add to this collection by amending, updating articles or writing new texts. Please contact adolf.ratzka@independentliving.org